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Saving a Child With a Rare Disease | Hemoshear Therapeutics | TEDxCharlottesville (TEDx Talks) View | |
Boy with ultra-rare disease begins groundbreaking gene therapy (CBC News: The National) View | |
Parents race to save toddler’s life after rare genetic disease diagnosis | Nightline (ABC News) View | |
Saving Children’s Lives and Getting Children Interested in Saving Lives | David Pearce | TEDxFargo (TEDx Talks) View | |
10 Tips for Newly Diagnosed Rare Disease Patients and Families (National Organization for Rare Disorders (NORD)) View | |
Curing Rare Disease Is Possible | Lynn Hopkins | TEDxBelmontShore (TEDx Talks) View | |
The Misnomer of Rare [Disease] | Michelle Berg | TEDxFargo (TEDx Talks) View | |
A Family's Journey with Rare Disease | The Power of Knowing (NationwideChildrens) View | |
Solving the mystery of rare diseases with technology and crowdfunding: Jimmy Lin at TEDxMidAtlantic (TEDx Talks) View | |
Diagnosing undiagnosable children's diseases: Jimmy Lin at TEDxMidwest (TEDx Talks) View |